Adhesions..

[Delilah]

Anyone out there have, had have, or know others who do or have had, adhesions?

http://www.adhesions.org/ptguide.htm

A little info in case you haven't heard of them before.

[valerie]

I guess I can thank my lucky stars I don't have them... and thank all
the nurses who carped at me for days about walking upright with my
hands clasped behind me... it worked!

[CARLA]

Yes I have had experience with adhesions from my hysterectomy I had at 30 years old. Over the years the scar tissue created adhesions that attached to my lower bowel. I had as many as they could safely remove in another surgery about 15 years ago. Still have some that couldn't be removed but for the most part OK now.

[Patsy Warnick]

I've been a mess with adhesions. I've had @ 12 surgerys to remove them and everything the adhesions were attached to and wrapped around. My last surgery was last year and I feel theres still some left.
The adhesions nightmare started in 1995 with a partial hysterectomy.
I can't explain how painful the adhesions have been - and how life altering it has been. The worst part of the nightmare was getting a DR to believe me, most DRs prescribed a pill and sent me away.

Patsy

[Delilah]

Originally Posted by Patsy Warnick

I've been a mess with adhesions. I've had @ 12 surgerys to remove them and everything the adhesions were attached to and wrapped around. My last surgery was last year and I feel theres still some left.
The adhesions nightmare started in 1995 with a partial hysterectomy.
I can't explain how painful the adhesions have been - and how life altering it has been. The worst part of the nightmare was getting a DR to believe me, most DRs prescribed a pill and sent me away.

Patsy

Patsy, would it be alright to communicate with you via PM?

I have experienced and am experiencing much the same.
I had a complete hysterectomy 3 years ago, and than about 5 other surgeries prior to having that, and now I have really bad adhesions. The doctor tells me there is nothing I can do, as having a surgery to get rid of them will just cause more of them, and instead just tells me to "bare it". It is sometimes almost as bad pain as what I went to have the hysterectomy for to begin with. I was thinking of trying to plead my case to my GP for some kind of help other than screaming into my pillow and being completely debilitated at least once a week. It is sometimes hard not to let the helplessness of this and my other health issues hammer down on me. But I do try, and really I guess that's all you can do.

12 surgeries to remove them sounds awful. Did they remove them and than you'd get more grow back? Did you get any relief after the surgery, even if only for a short while? Sometimes I believe it would be worth it even to have a weeks break from it.

[Delilah]

Originally Posted by CARLA

Yes I have had experience with adhesions from my hysterectomy I had at 30 years old. Over the years the scar tissue created adhesions that attached to my lower bowel. I had as many as they could safely remove in another surgery about 15 years ago. Still have some that couldn't be removed but for the most part OK now.

Wow, this seems to be a recurring theme with hysterectomy surgeries at least.

You sound very lucky they were able to remove most and then didn't get more from that surgery. Sorry you still have some, but glad to hear you're mostly okay now. Gives the rest of us some hope!

[Elvira]

Yep - I have them as a result of endometriosis. Very sore.

[SuzyB]

Yep, I have them. I had my first gyne surgery at 17 for endometriosis, then 3 years ago I had an eptopic, they was unable to do a laparoscopy due to scar tissue, so they performed a cut 8 inches along bikini line. They later discovered they removed the wrong tube so I went back into surgery as the other tube containing the pregnancy burst, after this surgery they put in drains as they discovered I had an abscess, they had had to remove a lot of tissue. Two weeks later when I'd healed, the tubes burst through my stomach, they had forgot to remove them, I went in for another surgery to have them removed. That was 3 surgeries in 3 weeks. After suffering pain, the consultant discovered that they'd forgot to sew my stomach muscle back, so I had an hernia with my bowl hanging out, they repaired this through the same cut last year, so that totalled 4 big surgery's in the same area in 18 months. I am left now with what they call adhesion pain!!!!!

[Patsy Warnick]

Delilah

Your more than welcome to PM me anytime - I hope I can help.
My surgerys did give me relief - but by the time a DR would believe me and remove them, I was such a mess one surgery that was suppose to be 1 hour took nearly 3. My husband thought I'd died.
That much of a mess a DR just couldn't get all - but I'll tell ya I got to where I couldn't stand up straight - I was glued inside.
Drs had to put a metal mesh in my stomach area - in one year I had 3 surgerys.

Delilah - I walked out on Drs that wouldn't take me serious - I had to shop for a DR that would believe me & it wasn't easy to find one.

Do not live with it - I've had the same surgeon for @ 10 of the surgerys - Laposcopic surgery is a breeze compared to a C-section - Lapo will not develope the adhesions as another approach. You'll need to shop for a DR that will help and do a Lapo and improve your life - theres no living with it..

PM me anytime - I hope I've helped alittle..

Patsy

[Delilah]

Originally Posted by Elvira

Yep - I have them as a result of endometriosis. Very sore.

Wow, yeah. Endometriosis is such a horrifying disease. I had that too, up until the hysterectomy..which now in turn has given me the adhesions, the menopause, the bone problems.