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Thread: MRKH/Rokitansky syndrome

  1. #21
    Senior Member Tater Tazz's Avatar
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    Re: MRKH/Rokitansky syndrome

    Hello Amy, I have never heard of your condition, but I would be more than glad to listen if you need someone to talk too. Good luck to you! tazz

  2. #22
    Senior Member Marie5656's Avatar
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    Re: MRKH/Rokitansky syndrome

    Quote Originally Posted by Tater Tazz View Post
    Hello Amy, I have never heard of your condition, but I would be more than glad to listen if you need someone to talk too. Good luck to you! tazz
    Hey, tazz..this thread is a couple of years old, and I notice the originator of it only made 6 posts..doubt she is even still around.

  3. #23
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    Re: MRKH/Rokitansky syndrome

    Hi Tazz, i am still around, just not posting on the thread. If you would like to chat or have any questions about the condition then feel free to email me on amyrogers88@hotmail.com.

    Hope you are well.

    Amy xxx

  4. #24
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    Re: MRKH/Rokitansky syndrome

    I found out I had rokitansky syndrome when i was 16, so you would have thought I would have a grip on things by now, yet I've felt alone for so long. This is my first attempt at taking to others who may be going through the same ordeal. Just want to say hi to you all, hoping some day I can open up and say more, right now its a struggle to put my thoughts in writing.. look forward to the day I can

  5. #25
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    Re: MRKH/Rokitansky syndrome

    Helo naomi. Sorry to hear about your difficulty. Since this is your first post, I thought I'd just say "hi" so you know you aren't being ignored.

    Should also point out that the post before yours on this matter dates from Aug 2007, so some of the people might not still be posting.
    The crowd: "Yes! We are all individuals!"
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  6. #26
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    Re: MRKH/Rokitansky syndrome

    thank you for responding do you know of other forums I can join? Do you mind me asking, why you joined this forum? what is your status with rokitansky? how have delt/are you dealing with it?
    is it better to email? you can email me if you prefer privacy; naomi.g87@live.com

  7. #27
    Supporting Member spot's Avatar
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    Re: MRKH/Rokitansky syndrome

    Hi naomi,

    The sole connection this site has with MRKH/Rokitansky syndrome is this thread, as far as I'm aware. Those with an interest see the thread on Google and sign up to post into it but the few members are spread out over a seven year history. As a way of getting information or making contacts it doesn't seem very satisfactory. A couple have left email addresses like you did, if you mail them they might log back in here and pass on more of their experiences and advice.

    By all means hang around and chat with the members. Who knows, in a year there might be more activity in this thread and then you'll be our resident expert.
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  8. #28
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    Re: MRKH/Rokitansky syndrome

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    I hadn't even heard of this syndrome until your post came up in New Posts and I had a look. Sorry. Then I noticed this was an old thread and thought I'd warn you there might not be much response.
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