Anyone out there have, had have, or know others who do or have had, adhesions?
http://www.adhesions.org/ptguide.htm
A little info in case you haven't heard of them before.
Adhesions..
Adhesions..
I guess I can thank my lucky stars I don't have them... and thank all
the nurses who carped at me for days about walking upright with my
hands clasped behind me... it worked!
:-6
the nurses who carped at me for days about walking upright with my
hands clasped behind me... it worked!
:-6
Adhesions..
Yes I have had experience with adhesions from my hysterectomy I had at 30 years old. Over the years the scar tissue created adhesions that attached to my lower bowel. I had as many as they could safely remove in another surgery about 15 years ago. Still have some that couldn't be removed but for the most part OK now. 
ALOHA!!
MOTTO TO LIVE BY:
"Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body, but rather to skid in sideways, chocolate in one hand, champagne in the other, body thoroughly used up, totally worn out and screaming.
WOO HOO!!, what a ride!!!"
MOTTO TO LIVE BY:
"Life should NOT be a journey to the grave with the intention of arriving safely in an attractive and well preserved body, but rather to skid in sideways, chocolate in one hand, champagne in the other, body thoroughly used up, totally worn out and screaming.
WOO HOO!!, what a ride!!!"
-
Patsy Warnick
- Posts: 4567
- Joined: Fri Feb 03, 2006 12:53 am
Adhesions..
I've been a mess with adhesions. I've had @ 12 surgerys to remove them and everything the adhesions were attached to and wrapped around. My last surgery was last year and I feel theres still some left.
The adhesions nightmare started in 1995 with a partial hysterectomy.
I can't explain how painful the adhesions have been - and how life altering it has been. The worst part of the nightmare was getting a DR to believe me, most DRs prescribed a pill and sent me away.
Patsy
The adhesions nightmare started in 1995 with a partial hysterectomy.
I can't explain how painful the adhesions have been - and how life altering it has been. The worst part of the nightmare was getting a DR to believe me, most DRs prescribed a pill and sent me away.
Patsy
Adhesions..
Patsy Warnick;555914 wrote: I've been a mess with adhesions. I've had @ 12 surgerys to remove them and everything the adhesions were attached to and wrapped around. My last surgery was last year and I feel theres still some left.
The adhesions nightmare started in 1995 with a partial hysterectomy.
I can't explain how painful the adhesions have been - and how life altering it has been. The worst part of the nightmare was getting a DR to believe me, most DRs prescribed a pill and sent me away.
Patsy
Patsy, would it be alright to communicate with you via PM?
I have experienced and am experiencing much the same.
I had a complete hysterectomy 3 years ago, and than about 5 other surgeries prior to having that, and now I have really bad adhesions. The doctor tells me there is nothing I can do, as having a surgery to get rid of them will just cause more of them, and instead just tells me to "bare it". It is sometimes almost as bad pain as what I went to have the hysterectomy for to begin with. I was thinking of trying to plead my case to my GP for some kind of help other than screaming into my pillow and being completely debilitated at least once a week. It is sometimes hard not to let the helplessness of this and my other health issues hammer down on me. But I do try, and really I guess that's all you can do.
12 surgeries to remove them sounds awful. Did they remove them and than you'd get more grow back? Did you get any relief after the surgery, even if only for a short while? Sometimes I believe it would be worth it even to have a weeks break from it.
The adhesions nightmare started in 1995 with a partial hysterectomy.
I can't explain how painful the adhesions have been - and how life altering it has been. The worst part of the nightmare was getting a DR to believe me, most DRs prescribed a pill and sent me away.
Patsy
Patsy, would it be alright to communicate with you via PM?
I have experienced and am experiencing much the same.
I had a complete hysterectomy 3 years ago, and than about 5 other surgeries prior to having that, and now I have really bad adhesions. The doctor tells me there is nothing I can do, as having a surgery to get rid of them will just cause more of them, and instead just tells me to "bare it". It is sometimes almost as bad pain as what I went to have the hysterectomy for to begin with. I was thinking of trying to plead my case to my GP for some kind of help other than screaming into my pillow and being completely debilitated at least once a week. It is sometimes hard not to let the helplessness of this and my other health issues hammer down on me. But I do try, and really I guess that's all you can do.
12 surgeries to remove them sounds awful. Did they remove them and than you'd get more grow back? Did you get any relief after the surgery, even if only for a short while? Sometimes I believe it would be worth it even to have a weeks break from it.
Adhesions..
CARLA;554998 wrote: Yes I have had experience with adhesions from my hysterectomy I had at 30 years old. Over the years the scar tissue created adhesions that attached to my lower bowel. I had as many as they could safely remove in another surgery about 15 years ago. Still have some that couldn't be removed but for the most part OK now.
Wow, this seems to be a recurring theme with hysterectomy surgeries at least.
You sound very lucky they were able to remove most and then didn't get more from that surgery. Sorry you still have some, but glad to hear you're mostly okay now. Gives the rest of us some hope! :-6
Wow, this seems to be a recurring theme with hysterectomy surgeries at least.
You sound very lucky they were able to remove most and then didn't get more from that surgery. Sorry you still have some, but glad to hear you're mostly okay now. Gives the rest of us some hope! :-6
Adhesions..
Yep - I have them as a result of endometriosis. Very sore.
Adhesions..
Yep, I have them. I had my first gyne surgery at 17 for endometriosis, then 3 years ago I had an eptopic, they was unable to do a laparoscopy due to scar tissue, so they performed a cut 8 inches along bikini line. They later discovered they removed the wrong tube so I went back into surgery as the other tube containing the pregnancy burst, after this surgery they put in drains as they discovered I had an abscess, they had had to remove a lot of tissue. Two weeks later when I'd healed, the tubes burst through my stomach, they had forgot to remove them, I went in for another surgery to have them removed. That was 3 surgeries in 3 weeks. After suffering pain, the consultant discovered that they'd forgot to sew my stomach muscle back, so I had an hernia with my bowl hanging out, they repaired this through the same cut last year, so that totalled 4 big surgery's in the same area in 18 months. I am left now with what they call adhesion pain!!!!!
I am nobody..nobody is perfect...therefore I must be Perfect!
-
Patsy Warnick
- Posts: 4567
- Joined: Fri Feb 03, 2006 12:53 am
Adhesions..
Delilah
Your more than welcome to PM me anytime - I hope I can help.
My surgerys did give me relief - but by the time a DR would believe me and remove them, I was such a mess one surgery that was suppose to be 1 hour took nearly 3. My husband thought I'd died.
That much of a mess a DR just couldn't get all - but I'll tell ya I got to where I couldn't stand up straight - I was glued inside.
Drs had to put a metal mesh in my stomach area - in one year I had 3 surgerys.
Delilah - I walked out on Drs that wouldn't take me serious - I had to shop for a DR that would believe me & it wasn't easy to find one.
Do not live with it - I've had the same surgeon for @ 10 of the surgerys - Laposcopic surgery is a breeze compared to a C-section - Lapo will not develope the adhesions as another approach. You'll need to shop for a DR that will help and do a Lapo and improve your life - theres no living with it..
PM me anytime - I hope I've helped alittle..
Patsy
Your more than welcome to PM me anytime - I hope I can help.
My surgerys did give me relief - but by the time a DR would believe me and remove them, I was such a mess one surgery that was suppose to be 1 hour took nearly 3. My husband thought I'd died.
That much of a mess a DR just couldn't get all - but I'll tell ya I got to where I couldn't stand up straight - I was glued inside.
Drs had to put a metal mesh in my stomach area - in one year I had 3 surgerys.
Delilah - I walked out on Drs that wouldn't take me serious - I had to shop for a DR that would believe me & it wasn't easy to find one.
Do not live with it - I've had the same surgeon for @ 10 of the surgerys - Laposcopic surgery is a breeze compared to a C-section - Lapo will not develope the adhesions as another approach. You'll need to shop for a DR that will help and do a Lapo and improve your life - theres no living with it..
PM me anytime - I hope I've helped alittle..
Patsy
Adhesions..
Elvira;556312 wrote: Yep - I have them as a result of endometriosis. Very sore.
Wow, yeah. Endometriosis is such a horrifying disease. I had that too, up until the hysterectomy..which now in turn has given me the adhesions, the menopause, the bone problems.
Wow, yeah. Endometriosis is such a horrifying disease. I had that too, up until the hysterectomy..which now in turn has given me the adhesions, the menopause, the bone problems.
Adhesions..
SuzyB;556321 wrote: Yep, I have them. I had my first gyne surgery at 17 for endometriosis, then 3 years ago I had an eptopic, they was unable to do a laparoscopy due to scar tissue, so they performed a cut 8 inches along bikini line. They later discovered they removed the wrong tube so I went back into surgery as the other tube containing the pregnancy burst, after this surgery they put in drains as they discovered I had an abscess, they had had to remove a lot of tissue. Two weeks later when I'd healed, the tubes burst through my stomach, they had forgot to remove them, I went in for another surgery to have them removed. That was 3 surgeries in 3 weeks. After suffering pain, the consultant discovered that they'd forgot to sew my stomach muscle back, so I had an hernia with my bowl hanging out, they repaired this through the same cut last year, so that totalled 4 big surgery's in the same area in 18 months. I am left now with what they call adhesion pain!!!!!
Omg Suzy, that is such a terrible hell you have been through.
And sometimes you have to wonder if the cure is worse than the cause.
Should you ever want to sue any of those doctors for malpractice, it sounds like you very much could. Especially if it was the same doctor who did the wrong tube, and than forgot to remove them, and than also forgot to sew in your stomach muscle! It is a very scarey reality that some of these doctors are allowed to practice medicine and surgery.
I am truly sorry for your suffering, Suzy.
Omg Suzy, that is such a terrible hell you have been through.
And sometimes you have to wonder if the cure is worse than the cause.
Should you ever want to sue any of those doctors for malpractice, it sounds like you very much could. Especially if it was the same doctor who did the wrong tube, and than forgot to remove them, and than also forgot to sew in your stomach muscle! It is a very scarey reality that some of these doctors are allowed to practice medicine and surgery.
I am truly sorry for your suffering, Suzy.
Adhesions..
Delilah;557917 wrote: Omg Suzy, that is such a terrible hell you have been through.
And sometimes you have to wonder if the cure is worse than the cause.
Should you ever want to sue any of those doctors for malpractice, it sounds like you very much could. Especially if it was the same doctor who did the wrong tube, and than forgot to remove them, and than also forgot to sew in your stomach muscle! It is a very scarey reality that some of these doctors are allowed to practice medicine and surgery.
I am truly sorry for your suffering, Suzy.
The Surgeon was sacked 2 weeks after it happened. Case should be sorted out in the next couple of months.
And sometimes you have to wonder if the cure is worse than the cause.
Should you ever want to sue any of those doctors for malpractice, it sounds like you very much could. Especially if it was the same doctor who did the wrong tube, and than forgot to remove them, and than also forgot to sew in your stomach muscle! It is a very scarey reality that some of these doctors are allowed to practice medicine and surgery.
I am truly sorry for your suffering, Suzy.
The Surgeon was sacked 2 weeks after it happened. Case should be sorted out in the next couple of months.
I am nobody..nobody is perfect...therefore I must be Perfect!
Adhesions..
Patsy Warnick;556364 wrote: Delilah
Your more than welcome to PM me anytime - I hope I can help.
My surgerys did give me relief - but by the time a DR would believe me and remove them, I was such a mess one surgery that was suppose to be 1 hour took nearly 3. My husband thought I'd died.
That much of a mess a DR just couldn't get all - but I'll tell ya I got to where I couldn't stand up straight - I was glued inside.
Drs had to put a metal mesh in my stomach area - in one year I had 3 surgerys.
Delilah - I walked out on Drs that wouldn't take me serious - I had to shop for a DR that would believe me & it wasn't easy to find one.
Do not live with it - I've had the same surgeon for @ 10 of the surgerys - Laposcopic surgery is a breeze compared to a C-section - Lapo will not develope the adhesions as another approach. You'll need to shop for a DR that will help and do a Lapo and improve your life - theres no living with it..
PM me anytime - I hope I've helped alittle..
Patsy
Thank you Patsy, it is good to know there are others here who can relate, understand and have been through many of the same experiences. Often times non-sufferers have no clue what it's like and simply could never understand or know what so many people go through with not just this but any health problems.
I have had that issue before too, problem with getting a doctor to listen to me that I know my own body and I know when something is wrong. I have heard from other people, who, when telling their doctor, begging them to help..the doctor will just tell them it's "all in their head", and stick them on anti-depressants even, when there is real physical problems and pain going on. Disgraceful.
You are right, in that if my doctor refuses to listen to me and my requests for something other than "you'll just have to live with it", I will be going to seek out someone who will try and help me. I have asked once, and that's what he told me, that I'd just have to put up with it for the rest of my life, because surgery can just cause more of them. When I ask him a second time, I'm not going to be as passive in my reply, that's for sure.
I've had massive issues with some doctors before myself...
At one point, my mother even went and started to complain to the hospital director, and when they wouldn't listen, went to the local politicians office. If she hadn't, I wouldn't be here today. No exaggeration.
Thank you for your knowledge and support, Patsy. I really appreciate it.
Your more than welcome to PM me anytime - I hope I can help.
My surgerys did give me relief - but by the time a DR would believe me and remove them, I was such a mess one surgery that was suppose to be 1 hour took nearly 3. My husband thought I'd died.
That much of a mess a DR just couldn't get all - but I'll tell ya I got to where I couldn't stand up straight - I was glued inside.
Drs had to put a metal mesh in my stomach area - in one year I had 3 surgerys.
Delilah - I walked out on Drs that wouldn't take me serious - I had to shop for a DR that would believe me & it wasn't easy to find one.
Do not live with it - I've had the same surgeon for @ 10 of the surgerys - Laposcopic surgery is a breeze compared to a C-section - Lapo will not develope the adhesions as another approach. You'll need to shop for a DR that will help and do a Lapo and improve your life - theres no living with it..
PM me anytime - I hope I've helped alittle..
Patsy
Thank you Patsy, it is good to know there are others here who can relate, understand and have been through many of the same experiences. Often times non-sufferers have no clue what it's like and simply could never understand or know what so many people go through with not just this but any health problems.
I have had that issue before too, problem with getting a doctor to listen to me that I know my own body and I know when something is wrong. I have heard from other people, who, when telling their doctor, begging them to help..the doctor will just tell them it's "all in their head", and stick them on anti-depressants even, when there is real physical problems and pain going on. Disgraceful.
You are right, in that if my doctor refuses to listen to me and my requests for something other than "you'll just have to live with it", I will be going to seek out someone who will try and help me. I have asked once, and that's what he told me, that I'd just have to put up with it for the rest of my life, because surgery can just cause more of them. When I ask him a second time, I'm not going to be as passive in my reply, that's for sure.
I've had massive issues with some doctors before myself...
At one point, my mother even went and started to complain to the hospital director, and when they wouldn't listen, went to the local politicians office. If she hadn't, I wouldn't be here today. No exaggeration.
Thank you for your knowledge and support, Patsy. I really appreciate it.
Adhesions..
Hi all... wanted to post again about this, I've exchanged pm's with
Delilah and wanted to say it here, too.
I felt my first post in this thread was a bit "flip". And I didn't really
answer her question.
I know adhesions can be very painful, I had an aunt who had them
and she was one of the ones who convinced me it would be best to
work to avoid them!
I feel for you guys and wanted you to know I do understand, even if
I personally don't have them. I didn't mean to make light of the
subject or come off boastful about it.
:-6
Delilah and wanted to say it here, too.
I felt my first post in this thread was a bit "flip". And I didn't really
answer her question.
I know adhesions can be very painful, I had an aunt who had them
and she was one of the ones who convinced me it would be best to
work to avoid them!
I feel for you guys and wanted you to know I do understand, even if
I personally don't have them. I didn't mean to make light of the
subject or come off boastful about it.
:-6
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Patsy Warnick
- Posts: 4567
- Joined: Fri Feb 03, 2006 12:53 am
Adhesions..
Val - I didn't feel you felt flip / so so about it.
Del - Keep Doctor shopping - I need to also.
My dr now just looks at me like I'm nuts - I know my body - and this pain isn't normal and is increasing now something is terribly wrong.
My DR has told me several time now to go to a Orthopedic surgeon - I want a MRI not back surgery. So, I don't go - a Ortho surgeon will find something wrong with my back - thats where his $$ money is. My husband took me to my DR a few weeks ago - She refused to order a MRI, and sent me to a labe for blood work, what a waste of time
With my history - one would think she trusted me - so now I wait - the lab work won't show anything - today the pain is so intense I can hardly walk. This is BS.
I'll be back to see my DR soon - I'll demand a MRI - I hurt too much
Patsy
Del - Keep Doctor shopping - I need to also.
My dr now just looks at me like I'm nuts - I know my body - and this pain isn't normal and is increasing now something is terribly wrong.
My DR has told me several time now to go to a Orthopedic surgeon - I want a MRI not back surgery. So, I don't go - a Ortho surgeon will find something wrong with my back - thats where his $$ money is. My husband took me to my DR a few weeks ago - She refused to order a MRI, and sent me to a labe for blood work, what a waste of time
With my history - one would think she trusted me - so now I wait - the lab work won't show anything - today the pain is so intense I can hardly walk. This is BS.
I'll be back to see my DR soon - I'll demand a MRI - I hurt too much
Patsy
Adhesions..
Patsy Warnick;558975 wrote: Val - I didn't feel you felt flip / so so about it.
Del - Keep Doctor shopping - I need to also.
My dr now just looks at me like I'm nuts - I know my body - and this pain isn't normal and is increasing now something is terribly wrong.
My DR has told me several time now to go to a Orthopedic surgeon - I want a MRI not back surgery. So, I don't go - a Ortho surgeon will find something wrong with my back - thats where his $$ money is. My husband took me to my DR a few weeks ago - She refused to order a MRI, and sent me to a labe for blood work, what a waste of time
With my history - one would think she trusted me - so now I wait - the lab work won't show anything - today the pain is so intense I can hardly walk. This is BS.
I'll be back to see my DR soon - I'll demand a MRI - I hurt too much
Patsy
Do adhesions show on MRI's, Patsy?
Yikes, sounds like your doc needs a refresher course in Patients 101.
Valerie, you did not sound flippant or boastful or make light of it whatsoever! I certainly didn't think you were. You're a kind and supportive person. I'm sorry to hear about your aunt's times with adhesions. I hope she can find some relief in anyway, be it through more surgery or pain medication.
Personally I'm not a big fan of being drugged up on painkillers. But sometimes its either that, or wanting to take a sharp kitchen utensil and performing your own surgery on your countertop.
I hope youre doing well from your surgeries, Val and wont have to go in for anymore for a long time! :-6
Del - Keep Doctor shopping - I need to also.
My dr now just looks at me like I'm nuts - I know my body - and this pain isn't normal and is increasing now something is terribly wrong.
My DR has told me several time now to go to a Orthopedic surgeon - I want a MRI not back surgery. So, I don't go - a Ortho surgeon will find something wrong with my back - thats where his $$ money is. My husband took me to my DR a few weeks ago - She refused to order a MRI, and sent me to a labe for blood work, what a waste of time
With my history - one would think she trusted me - so now I wait - the lab work won't show anything - today the pain is so intense I can hardly walk. This is BS.
I'll be back to see my DR soon - I'll demand a MRI - I hurt too much
Patsy
Do adhesions show on MRI's, Patsy?
Yikes, sounds like your doc needs a refresher course in Patients 101.
Valerie, you did not sound flippant or boastful or make light of it whatsoever! I certainly didn't think you were. You're a kind and supportive person. I'm sorry to hear about your aunt's times with adhesions. I hope she can find some relief in anyway, be it through more surgery or pain medication.
Personally I'm not a big fan of being drugged up on painkillers. But sometimes its either that, or wanting to take a sharp kitchen utensil and performing your own surgery on your countertop.
I hope youre doing well from your surgeries, Val and wont have to go in for anymore for a long time! :-6
Adhesions..
So I went to see a Nurse Practioner in the OB/GYN department (as all the GYN Dr.s were busy and booked up months in advanced)..
She is sending me on to a Gyn doctor who can perform surgery, for the adhesions and apparently I have more cysts! For frick's sake..I had a total hysterectomy..how can there still be cysts in there..!?! :-5
She is sending me on to a Gyn doctor who can perform surgery, for the adhesions and apparently I have more cysts! For frick's sake..I had a total hysterectomy..how can there still be cysts in there..!?! :-5